Congenital Heart Disease Young Adult Transition Program

We help teens and young adults with CHD build the skills and confidence to manage their health as they move into adult care.
Congenital Heart Disease Young Adult Transition Program

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Why choose us for young adult congenital heart disease (CHD) care?

Parents often spend years managing their child's heart health. As your child grows, you want to begin helping them take responsibility for their care. At UCSF Benioff Children's Hospitals, we work with you to prepare your child for this new stage.

We help teens and young adults understand their condition, recognize what it means for adulthood and take a more active role in their care. Families stay involved as roles change, with guidance shaped around each young person's strengths and needs.

Young adults continue to receive highly specialized heart expertise as they move into adult care. Our transition team works closely with UCSF adult congenital specialists to create clear next steps and provide support as young adults' medical and everyday needs evolve.

Building skills for adult life

Managing congenital heart disease as an adult involves more than making and attending appointments. Young people need practical skills to navigate health care and make informed decisions.

Our team helps them practice skills they can use throughout adulthood, including how to:

  • Manage medications, appointments and other health needs

  • Ask questions and speak up during medical visits

  • Understand insurance and health coverage

  • Plan for college, training or employment

  • Make healthy choices that protect long-term well-being

  • Know when and how to seek medical support

Support beyond cardiology

UCSF connects young adults and families with resources for needs that extend beyond managing a heart condition.

The Wellness Center for Youth With Chronic Conditions offers life-skills education, financial workshops and peer support. These resources can build confidence as they navigate everyday adult responsibilities.

Our transition team also works with UCSF primary care providers so young adults can connect with the broader care they need in adulthood.

We welcome young people and families to explore our adult congenital heart disease program and education before pediatric care ends. Learning about adult care early can make the next stage more familiar and easier to navigate.

Awards & achievements

Recognized nationally for excellence, we pair world-class medical expertise with compassionate care to deliver the best possible outcomes for children.
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  • U.S. News & World Report Best Children's Hospitals 2026-2027, cardiology and heart surgery

    Best in Northern California for cardiology & heart surgery

  • U.S. News & World Report Best Children's Hospitals 2026-2027, ranked in 11 specialties

    Ranked among the nation's best in 11 specialties

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Related conditions & treatments

  • Conditions
  • Treatments
    • Cardiovascular Care
    • Transition of Youth with Special Care Needs

Heart disease care for adults

UCSF Health provides lifelong specialty care for adults with congenital heart disease, with expertise ranging from ongoing monitoring to complex treatment.